Well, here we are again. Another season another blog post. Since my last posting, things have been looking up. A good friend of mine recommended a fantastic acupuncturist and I also have a new home PT whom I am seeing once a week. I am enjoying the changes I was so fearful of.
It is hard to believe that it is already July and the summer is in full swing, which in San Francisco means cold and foggy days, brrrrr! But, after hearing the news of triple digits on the East Coast, I think I'll take the fog (Trevor calls the fog nature's air condition). Plus, we can pretty much drive half an hour and be in summer time weather. Anyway, I will be enjoying (?) the heat and humidity soon enough as I am traveling east in a mere two weeks for a visit to N.J. and also back to Baltimore and Kennedy Krieger. Baltimore in July, I must be crazy! I am looking forward to my visit and am thankful we are able to pull it off. I wasn't sure it was going to happen as Trevor got a new job in April and would not be able to take two weeks off this summer, sooo I am going to be traveling without Trevor for the first time since my TM onset. I'm not quite ready to travel solo, so mom and dad will be flying out to San Francisco for a visit and then I will be traveling back with them and at their mercy for almost two weeks (or is it the other way around). It's a big step for me and although I feel the butterflies, I am excited to test out my nerves. Trevor will fly out at the end of the trip for a quick visit and then we will travel back together. Another step towards independence!
Although I haven't had any major gains physically in the past few months- I do feel like I am gaining my life back and exploring what I can do with what I have. To paraphrase Ferris Bueller, life is too short and I don't want to let it pass me by, so I have been trying new things and challenging myself both mentally and physically. I am wrapping up an online writing class, a small step towards going back to school and I also started outdoor cycling. The cycling is incredibly freeing and allows me to enjoy exercise that is fun! The cycling program is run by fantastic center for people with disabilities called B.O.R.P and they have all kinds of bikes to use for a very low fee. I am slowly working my way up and hope to one day buy my own bike and train for a marathon. I'm at 2.5 miles an hour right now, ... it may be a while. You may be wondering at this point, "gee, I wonder what Cynthia looks like on the bike?" Well, you are in luck because I just happen to have a video. Enjoy! VIDEO
Love and Peace,
Cynthia
Thursday, July 8, 2010
Sunday, April 4, 2010
Change is good, right?
Spring is a time of change. It is usually a welcome change from the doldrums of winter. We all look forward to seeing the new blossoms on the trees and flowers popping up. In our back garden (kept up by neighbor, friend, and landlord Petra), the calla lilies and forgot-me-knots have taken over and it is quite spectacular.
I have been fervently hoping for change in a few different ways. The obvious is that I would like to see change physically. I'm still diligent about physical therapy, but improvements have been difficult to gauge. Certainly nothing dramatic has happened in many, many months. Unfortunately, the most obvious change has been increased pain. I am not writing that in order to illicit a sympathetic response, I'm just telling it like it is.
The other changes I have been hoping for are things such as Trevor getting a new job, us finding a reasonable priced (yet fabulous) accessible apartment, me becoming more independent and other treatment options becoming available. These are just a few in a long list, but you get the idea. Well, Trevor did get a new job (yeah!), but he will be working weekends (boo!). I wouldn't mind the weekend working thing if I could get out more independently, but those other changes haven't happened yet. So while I'm trying to get used to the idea of a less freedom from our apartment, there are other changes happening that I did not wish for. How dare this happen. I mean, really! It seems that other people are busy living their lives as well, which means change for them. The big three right now are my much beloved home PT Michael has taken a new job that is full time, so no time for me. He is helping to find a replacement though. Also, my acupuncturist Laurence is on sabbatical to France for a year. Another replacement to try and find. I've been working with both Laurence and Michael since coming home from the hospital over 2 years ago, so replacing them will be difficult, but hopefully not impossible. The last change saddens me the most. My dear friend Jennifer is moving to Cincinnati. She is not replaceable.
Here is the change that I have been desiring, yet I have the blues. As is often the case in life, the things we have least control over can have the most impact on our lives. Kind of like a giant meteor.
So I will buck up and try to see the positive. After all, the saying goes, "April showers bring May flowers".
I have been fervently hoping for change in a few different ways. The obvious is that I would like to see change physically. I'm still diligent about physical therapy, but improvements have been difficult to gauge. Certainly nothing dramatic has happened in many, many months. Unfortunately, the most obvious change has been increased pain. I am not writing that in order to illicit a sympathetic response, I'm just telling it like it is.
The other changes I have been hoping for are things such as Trevor getting a new job, us finding a reasonable priced (yet fabulous) accessible apartment, me becoming more independent and other treatment options becoming available. These are just a few in a long list, but you get the idea. Well, Trevor did get a new job (yeah!), but he will be working weekends (boo!). I wouldn't mind the weekend working thing if I could get out more independently, but those other changes haven't happened yet. So while I'm trying to get used to the idea of a less freedom from our apartment, there are other changes happening that I did not wish for. How dare this happen. I mean, really! It seems that other people are busy living their lives as well, which means change for them. The big three right now are my much beloved home PT Michael has taken a new job that is full time, so no time for me. He is helping to find a replacement though. Also, my acupuncturist Laurence is on sabbatical to France for a year. Another replacement to try and find. I've been working with both Laurence and Michael since coming home from the hospital over 2 years ago, so replacing them will be difficult, but hopefully not impossible. The last change saddens me the most. My dear friend Jennifer is moving to Cincinnati. She is not replaceable.
Here is the change that I have been desiring, yet I have the blues. As is often the case in life, the things we have least control over can have the most impact on our lives. Kind of like a giant meteor.
So I will buck up and try to see the positive. After all, the saying goes, "April showers bring May flowers".
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